Public Health in the Rockies 2026

The Colorado Community Survey Data Results Report offers a comprehensive, statewide snapshot of the lived experiences, challenges, and priorities of individuals with intellectual and developmental disabilities (IDD) and their families. Across 503 responses, 288 of which were validated, participants shared a resounding call for systems that are accessible, person-centered, and inclusive across every stage of life. The findings reveal both progress in areas like respect, engagement, and access to medical care, and continued disparities in communication, behavioral health, housing, and employment.
Respondents consistently reported difficulty navigating fragmented systems, especially during major transitions such as aging out of school or the loss of family caregivers. Families emphasized the importance of succession planning, clear benefits guidance, and conflict-free case management to sustain quality of life and autonomy over time.


Employment data showed both potential and inequity, 57% have work experience, but only 15% feel confident in finding jobs without rejection. Families cited inconsistent job coaching and employer bias as major barriers. In education, only 28% of respondents were currently enrolled, revealing significant gaps in accommodation, communication, and accountability within schools.
Most respondents live with family (57%), reflecting limited access to affordable, accessible, and independent housing options. Transportation challenges, especially in rural areas, compound these barriers, with 78% depending on family or informal supports and only 22% using public transit. Accessibility and safety issues were widespread.

Thematic and content analyses from focus groups reinforced survey findings: participants value belonging, meaningful work, and community engagement, while expressing deep concern about system fragility, workforce shortages, and aging caregiver crises. Families urged for a shift from reactive systems to proactive, disability-informed solutions that honor lived experience.